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Friday, September 4, 2009

Elhers-Danlos Sucks!

Today, I decided to talk about how bad EDS has been for me the last couple of weeks. It seems like there are certain joints that get injured or hyperextened or just inflamed that the pain just lingers for weeks. No amount of medication seem to touch it. This week for me it's my left thumb down to mid-wrist have been in excrucitatingly gnawing pain. It doesn't help that I always have to use my hands so they never get rest. Even when I sleep I keep my fists balled up underneath me and it just makes it worse. My fingers have been getting stuck in place and although this has always happened, it has been correlating more with the pain.

My shoulder joint area has been twiching and aching non-stop and my large toe joints have been cramping. I have been told that I have Fibromyalgia, but not formally diagnosed and since I don't believe that much can be done about that I haven't pressed too much on that matter.

I feel so guilty about not being able to much with my kids, but if I don't take it easy, then I can be laid up for days.